CASK FAMILY SCHOLARSHIPS
Stay tuned for the opening of the 2023 scholarship application.
What is the CASK Family Scholarship?
Donors came together for #GivingTuesday in 2021, to raise funds to help families affected by CASK Gene mutations. The CASK Gene Foundation met their goal of $1,000, to provide four families with $250 each.
The goal of of these scholarships is to help families with medical costs, therapies, equipment, or other such needs that may not be covered by insurance.
To be eligible for one of these $250 scholarships, applicants should apply on behalf of a person with a CASK gene disorder who is unable to take care of their own personal needs.
All applications that are determined to meet the eligibility criteria will then be entered into a random drawing to select the four scholarship recipients.
The final recipients will be asked to provide in return, a note of thanks for the donors, and this can include a picture if desired - or it can be entirely anonymous.
The 2020 #GivingTuesday fundraiser kicked off the first of our CASK Gene Family Scholarships. These blessed dear CASK Warriors - Emmy and Indie!
Thank you from Emmy’s family:
“Emmy received the CASK diagnosis in December 2020 at about 20 months of age. We had known since before birth that she had Spina Bifida, but adding the CASK diagnosis was uncharted territory with very little information. She is actually the only known person to have both CASK and a Neural Tube Defect, making our situation even more unique in a few different ways. The CASK Scholarship allowed us to access an outside of the box therapy tool, the Rezzimax, to provide Emmy with a form of therapy we could use at home across a variety of her needs. Access to the funds from the scholarship made this possible, and we are so grateful to the donors who continue to contribute to ongoing funding for scholarships, research, accessibility, and awareness for CASK.”
Thank you from Indie’s family:
“We were so very grateful to have been recipients of a CASK Gene Foundation scholarship! While our daughter Indie receives some therapy services through the state, we have found that these services fall short in meeting all of her needs. Paying out of pocket for private services however quickly adds up.
Receiving the CASK scholarship allowed Indie to continue receiving feeding therapy throughout her g-tube transition which has been invaluable. Indie LOVES mealtime with her tube as we now have strategies for her to play, taste, and practice oral skills while being fed. We hope that one day she will have the chance to transition back to oral feeding!”
The 2021 #GivingTuesday fundraiser made a difference for 4 families!
Thank you from Liam’s family:
“We are so grateful that we were awarded a 2022 Cask Gene Foundation Scholarship. We were able to buy a vibration board for Liam. It allows his muscles to relax and his feet to settle in flat. It also helps with his sensory integration. We are so excited to see how this will help his future. ”
